About Huntington's Disease Society of America

Huntington's Disease Society of America

The Huntington's Disease Society of America (HDSA) is a national non-profit organization dedicated to improving the lives of people affected by Huntington's disease. With headquarters in New York, New York, HDSA provides support and resources for individuals and families impacted by this devastating neurodegenerative disorder.

At HDSA, our mission is to help those affected by Huntington's disease through education, advocacy, and research. We strive to raise awareness about the disease and provide support for those living with it. Our organization also works to advance research efforts in order to find effective treatments and ultimately a cure for Huntington's disease.

One of the key initiatives of HDSA is to provide comprehensive information about Huntington's disease. Through our website, hdsa.org/about-hdsa/about/, individuals can access valuable resources such as educational materials, support groups, and information on clinical trials. We aim to empower individuals with knowledge about the disease so they can make informed decisions about their care and treatment options.

In addition to providing educational resources, HDSA offers a range of support services for individuals and families affected by Huntington's disease. This includes assistance with finding local support groups, connecting with healthcare professionals who specialize in treating the disease, and accessing financial assistance programs.

Furthermore, HDSA is committed to advocating for policies that benefit those affected by Huntington's disease. We work at both the state and federal levels to promote legislation that supports access to quality care and services for individuals living with the condition.

Overall, the Huntington's Disease Society of America is dedicated to serving as a lifeline for individuals and families impacted by Huntington's disease. Through our comprehensive support services, advocacy efforts, and commitment to advancing research, we are working towards a future where no one has to face this challenging illness alone.